Faith Newton, professor of education at Delaware State University, was named by U.S. Secretary of Health and Human Services Tom Price as the chairperson of the Chronic Fatigue Syndrome Advisory Committee.
Myalgic encephalomyelitis — known as chronic fatigue syndrome — is a disease affecting more than 1 million Americans, with symptoms that include debilitating fatigue, severe circulatory problems, chronic joint pain and neurocognitive issues collectively known as “brain fog.” There is no cure for ME/CFS, and its cause is not understood. Clinical research on treatment and management of the disease is ongoing.
Newton became involved with ME/CFS more than a decade ago when her son was diagnosed
with the disease and has since become the leading national recognized expert in the accommodations that are necessary to insure that children suffering from ME/CFS receive a quality education.
“With education and treatment, many of these children can eventually go to college, find jobs and become self-sufficient adults. But knowing how to help them learn is critical,” said Newton.
The advisory committee comprises primarily of clinicians and health administrators specializing in the disease; the committee is charged with making policy recommendations to the Department of Health and Human Services, as well as collaborating with organizations like the Centers for Disease Control, the National Institute of Health and the Department of Education.